PKU Resources
Phenylketonuria (PKU)
What is Phenylketonuria (PKU)?
- Family PKU Booklet, BIMDG, supported by Nutricia Metabolics
- NIH - National Library of Medicine: Description of PKU
- National Organization for Rare Disorders: Rare Disease Database overview of PKU
Phe & Protein Tracking
- Simplified PKU Food Plan: Ask your metabolic dietitian nutritionist if this plan is right for you.
- Protein Food Log Template
- Phe Food Log Template
Online nutrient trackers:
Recipes
- Cook for Love - Low Protein Recipes
- Cambrooke - Low Protein Foods Recipes
- Nutricia Metabolics - Recipes
Caregiver Tips
- Nutricia Learning Center: Guide to PKU - Dining Out
- Nutricia Learning Center: Guide to PKU - Babysitter
- Nutricia Learning Center: Guide to PKU – Grandparents
- Why do I need PKU formula?
School Preparation
- Low Protein Food Order: Sheet for School Food Service Directors
- Nutricia Metabolics: PKU Guide for Teachers & School Nurses
Low Protein Food Suppliers
- List of Low Protein Foods for Medicaid MCO Members & KY Metabolic Program
- Lil’s Dietary Specialty Shop
- Cambrooke
- Mevalia
- Nutricia
- Low Protein Foods at the Grocery Store
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