Transition to Adulthood

"Making The World Work For Adults With Autism" story featured on National Public Radio (NPR)

Advancing Futures for Adults with Autism

A consortium of organizations with the goal of increasing both private and public support specifically for adults with ASD. AFAA's website has more information about their goals, resources and news, as well as links to an active Facebook page.

 

Autism After 16 

A website for individuals with ASD and the families and professionals who support them. It includes extensive information about transition, postsecondary life, employment, housing, finance, health, and more.

Autism Speaks highlights stories about employees with ASD and testimonials from their employers in their Autism in the Workplace section.

 

Autistic Self-Advocacy Network (ASAN)

A nonprofit organization run by and for Autistic people. ASAN is advancing the disability rights movement for those with ASD. The organization organizes local chapters, resources, and several projects, including Autism Campus Inclusion and the Autistic Leaders Project.

 

Adult Policy Brief

Information brief prepared by the KY Autism Training Center - Fast Facts about Guardianship, Fast Facts on Special Needs Trusts, Improving Outcomes for Adults with ASD's Living in Kentucky, KATC Postsecondary Education Brief, Support System Policy Brief, The Legal System in Kentucky and Autism, Transition Practices in Kentucky.

 

Autism Speaks

The nation’s largest autism science and advocacy organization, has recently published several valuable resources that assist families on the journey from adolescence to adulthood. The Transition Tool Kit and the Transition Information Timeline in Kentucky can be used by families and providers to guide the transition to adulthood.

Transition Tool Kit

Autism Speaks Transition Information Timeline in Kentucky [PDF]

 

Bridges Transition Workshops

The Bridges to the Future Transitional Care Program offers a variety of educational workshops designed to prepare teens ages 16 to 18 for their upcoming transition from pediatric to adult care. The Bridges to the Future Transitional Care program is funded in part by a grant through the Kentucky Integrated Services for Children and Youth with Special Health Care Needs and the Commission for Children with Special Healthcare Needs (CCSHCN).

Workshop topics include the following:

Nutrition

Fitness, Sports, Recreation

Medication management

Social services

Knowing your rights

Finding adult services, Talking with health care providers

Relationships and Safe Sex

Bridges to the Future Transitional Care Program webinars on these topics are also available on the KY Autism Training Center YouTube Channel


The Job Accommodation Network

The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace. JAN's trusted consultants offer one-on-one guidance on workplace accommodations, the Americans with Disabilities Act (ADA) and related legislation, and self-employment and entrepreneurship options for people with disabilities. Assistance is available both over the phone and online. Those who can benefit from JAN's services include private employers of all sizes, government agencies, employee representatives, and service providers, as well as people with disabilities and their families. (Search: autism, Asperger, ASD fact sheet)

 

Rehabilitation Research and Training Center on Work Supports and Job Retention (Virginia Commonwealth University)

Established in 1983, VCU-RRTC (Virginia Commonwealth University Rehabilitation Research and Training Center on Workplace Supports and Job Retention) has grown into one of the largest Research and Training Centers in the United States. We serve as a Center of national excellence, providing resources for professionals, individuals with disabilities, and their representatives. For over 26 years, we have been at the forefront of the supported employment and workplace supports movements. Our team of nationally and internationally renowned researchers is committed to developing and advancing evidence-based practices to increase the hiring and retention for individuals with disabilities.

 

A Guide for Transition to Adulthood by the Organization for Autism Research [PDF]

This new Guide, Life Journey Through Autism: A Guide for Transition to Adulthood, is designed to give parents, teachers, and other education professionals an introduction to the transition to adulthood process. Each of these topics contained herein could merit an entire volume of its own; therefore, this Guide is intended to serve as a starting point for parents and educators as they seek to learn more. Further, given the diversity of expression that constitutes the autism spectrum, it is likely that none of the information presented here will be relevant to all young adults on the spectrum (with the possible exception of the overview of laws in support of transition planning); but hopefully, most of it will be relevant to your son, daughter, student, or client. In that way, A Guide for Transition to Adulthood might best be understood as an overview of the myriad questions you will need to answer as part of the transition planning process, while recognizing the answers to those questions will be diverse and individualized, as the spectrum itself.

 

Vocational Rehabilitation (Voc Rehab)

The Kentucky Office of Vocational Rehabilitation assists Kentuckians with disabilities to achieve suitable employment and independence. We recognize and respect the contribution of all individuals as a necessary and vital part of a productive society. We hope to assist Kentuckians with disabilities to achieve suitable employment and independence. We value the rights, merit and dignity of all persons with disabilities and the opportunity to pursue employment as an important aspect of a full and meaningful life. We value all staff, their individual talents, unique abilities and contributions to the agency's mission. And we value collaborative efforts and partnerships that support the agency's mission.

 

The Supported Employment Training Project

Having a job represents much more than earning a salary. Employment, including the kind of work one performs, influences one's personal identity, sense of belonging, and place in the world. Furthermore, employment represents one primary way of expressing the inherent human need to contribute – doing something that matters. Yet all too often the significance of employment for people with disabilities has been unrecognized, ignored, or minimized. Supported employment is designed to promote personalized employment opportunities for people with disabilities when they need support to: discover personal interests and contributions, find or negotiate a job that fits things they like to do and do well, become established as valued employees; and pursue job advancements. (Search: supported employment, adult employment)

 

Kentucky Association for Persons in Supported Employment (APSE)

The Kentucky Association for Persons in Supported Employment promotes the improvement of Supported Employment services for people with disabilities experiencing barriers through education, advocacy, collaboration, policy change, and elimination of barriers, empowerment, and community participation.

 

KY Cabinet for Workforce Development

The Department of Workforce Investment is made up of four offices. It is an agency of the Education and Workforce Development Cabinet. The agencies in Workforce Investment are the Office for Employment and Training, Office of Vocational Rehabilitation, Office for the Blind, and Office for Career and Technical Education. The mission of the Department of Workforce Investment is connecting Kentucky to employment, workforce information, education and training.

U.S. Department of Education - Office for Civil Rights

Students with Disabilities Preparing for Postsecondary Education: Know Your Rights and Responsibilities

Revised September 2011

 

Supporting Students with ASD at Postsecondary Institutions

Information for prospective Kentucky college students, parents and high school counselors.  Each year many students with autism and Aspergers decide to continue their education beyond high school and attend two and four year colleges or vocational schools. Although getting into college may seem a daunting experience, staying in college can also become a challenge. Accessing accommodations in college can help students with disabilities defeat these challenges and succeed as college students. 

 

 

Kentucky Employment Programs

SETP: Supported Employment Training Project - University of Kentucky Human Development Institute

OVR: Kentucky Office of Vocation Rehabilitation - Assists Kentuckians with disabilities to achieve suitable employment and independence

Carl D. Perkins Vocational Training Center - The mission of the Carl D. Perkins Vocational Training Center is that persons will achieve sustainable competitive integrated employment, maximize independence, and yet gain self-respect through the provision of comprehensive services.

ISAW: Innovative Supports for Autistic Workers - ISAW offers face to face training on autism and employment for all Business Service Teams in Kentucky

Coalition for Workforce Diversity -  The Coalition For Workforce Diversity is an alliance of companies and individuals working together to create employment opportunities for people with disabilities.

 

 

Additional Resources:

 This PBS Newshour video (air date April 22, 2011) covers the topic of autism in adults.

The Programming Hope Documentary trailer discusses the problem approximately 90% of adults with autism face: unemployment or underemployment. Programming Hope documents a high tech programming company that employs individuals with ASD. The full documentary is scheduled to be released in 2013.

The Autistic Global Initiative (AGI) of the Autism Research Institute and a team of 15 curriculum experts from across the United States have developed an online course designed for those who support individuals with autism and related disabilities in daily living and residential settings. The AGI Residential/Daily Living Support Course provides parents, siblings, family members, in-home support workers, agency support providers, and volunteers from the community the foundational knowledge, competencies, and tools necessary to support the daily living needs of transition aged students, young adults, and adults with ASD.

 

 

 

Articles and Research

Cimera, R., Wehman, P., West, M. & Burgess, S. (2012). Do Sheltered Workshops Enhance Employment Outcomes for Adults with Autism Spectrum Disorder?. Autism, 16(1), 87-94.

Hendricks, D. (2010). Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 32(2), 125-134.

McDonough, J. & Revell, G. (2010). Accessing employment supports in the adult system for transitioning youth with autism spectrum disorders. Journal of Vocational Rehabilitation, 32(2), 89-100.

Wehman, P. (2011). Employment for Persons with Disabilities: Where are we now and where do we need to go?Journal of Vocational Rehabilitation, 35(3), 145-151.