College of Education and Human Development College of Education and Human Development Autism is A complex developmentAl disAbility that typically appears during the first three years of life. Autism affects the normal development of the brain in the areas of social interaction and communication skills. Individuals with autism typically have difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities. The disorder makes it hard for them to communicate with others and relate to the outside world. Autism is the most common of the Pervasive Developmental Disorders, affecting an estimated 1 in 150 births (Centers for Disease Control Prevention, 2007). Autism is four times more prevalent in boys than girls and knows no racial, ethnic, or social boundaries. Family income, lifestyle, and educational levels do not affect the chance of autism’s occurrence. The uniqueness of each individual with autism makes the experience of raising, educating or providing services uniquely challenging. This means that families, educators and service providers must have access to research-based and practical information specific to autism. The KATC subscribes to the belief that no single program or treatment will benefit all individuals with autism. Autism is A complex developmentAl disAbility that typically appears during the first three years of life. Autism affects the normal development of the brain in the areas of social interaction and communication skills. Individuals with autism typically have difficulties in verbal and non-verbal communication, social interactions, and leisure or play activities. The disorder makes it hard for them to communicate with others and relate to the outside world. Autism is the most common of the Pervasive Developmental Disorders, affecting an estimated 1 in 150 births (Centers for Disease Control Prevention, 2007). Autism is four times more prevalent in boys than girls and knows no racial, ethnic, or social boundaries. Family income, lifestyle, and educational levels do not affect the chance of autism’s occurrence. The uniqueness of each individual with autism makes the experience of raising, educating or providing services uniquely challenging. This means that families, educators and service providers must have access to research-based and practical information specific to autism. The KATC subscribes to the belief that no single program or treatment will benefit all individuals with autism. Table of Contents Executive Summary of Services 2006 – 2007. . . . . . . . . . . . . . . . . . . 1 Incidence of Students with Autism in Kentucky................ 3 History of the Kentuky Autism Training Center . . . . . . . . . . . . . . . . 4 Kentucky Autism Training Center Advisory Board . . . . . . . . . . . . . . 5 Family-Based Training and Technical Assistance. . . . . . . . . . . . . . . 7 Family Consultations 7 Tool Box Series for Families 8 Promoting Positive Behavior and Functional Communication for Children with Autism 10 Family-Based Training 11 Family Focus Postive Behavior Support: A Pilot Project 12 School-Based Team Consultations and Technical Asistance Sessions ............................................... 14 Information Dissemination 17 Regional Workshops 20 Fundraising Efforts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29 KATC Staff. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 30 Kentucky Autism Training Center 2006 – 2007 Major Categories . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32 Kentucky Autism Training Center FY 03/04 Expense Report . . . . . 33 Table of Contents Executive Summary of Services 2006 – 2007. . . . . . . . . . . . . . . . . . . 1 Incidence of Students with Autism in Kentucky................ 3 History of the Kentuky Autism Training Center . . . . . . . . . . . . . . . . 4 Kentucky Autism Training Center Advisory Board . . . . . . . . . . . . . . 5 Family-Based Training and Technical Assistance. . . . . . . . . . . . . . . 7 Family Consultations 7 Tool Box Series for Families 8 Promoting Positive Behavior and Functional Communication for Children with Autism 10 Family-Based Training 11 Family Focus Postive Behavior Support: A Pilot Project 12 School-Based Team Consultations and Technical Asistance Sessions ............................................... 14 Information Dissemination 17 Regional Workshops 20 Fundraising Efforts . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29 KATC Staff. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 30 Kentucky Autism Training Center 2006 – 2007 Major Categories . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 32 Kentucky Autism Training Center FY 03/04 Expense Report . . . . . 33 KATC Annual Report 2006 – 2007 Family-Based Training and Technical Assistance KATC provided thirty-eight Family Consultations. In addition, KATC delivered a “Family Tool Box Series” consisting of eight sessions. During the sessions, one hundred and sixty participants received information on practical strategies, services and supports. To address regional needs, the KATC presented at six family support group meetings to approximately one-hundred and twenty attendees. A KATC Field Training Coordinator piloted the use of the Family-Focused Behavior Supports Model (FFPBS) with a family and their twelve-person team in Pulaski County. This consisted of monthly team meetings and two series of workshops directed at school and mental health professionals, community members and the team. Approximately one hundred and ninety-five individuals attended the two workshop series. This year the Kentucky Autism Training Center was awarded its first grant from the WHAS Crusade for Children. The focus of this grant was to establish the project, Promoting Positive Behavior and Functional Communication for Children with Autism. The KATC has worked intensively with fifteen children with autism, conducting a total of 125 sessions of functional behavioral assessment interviews, functional analyses, and treatment sessions. Some children received these services in the home, whereas others received the services in the classroom. Executive Summary of Services for 2006 – 2007 The mission of the Kentucky Autism Training Center is to enhance support for persons with autism by providing information and technical assistance to families and service providers across Kentucky. 1 KATC Annual Report 2006 – 2007 Family-Based Training and Technical Assistance KATC provided thirty-eight Family Consultations. In addition, KATC delivered a “Family Tool Box Series” consisting of eight sessions. During the sessions, one hundred and sixty participants received information on practical strategies, services and supports. To address regional needs, the KATC presented at six family support group meetings to approximately one-hundred and twenty attendees. A KATC Field Training Coordinator piloted the use of the Family-Focused Behavior Supports Model (FFPBS) with a family and their twelve-person team in Pulaski County. This consisted of monthly team meetings and two series of workshops directed at school and mental health professionals, community members and the team. Approximately one hundred and ninety-five individuals attended the two workshop series. This year the Kentucky Autism Training Center was awarded its first grant from the WHAS Crusade for Children. The focus of this grant was to establish the project, Promoting Positive Behavior and Functional Communication for Children with Autism. The KATC has worked intensively with fifteen children with autism, conducting a total of 125 sessions of functional behavioral assessment interviews, functional analyses, and treatment sessions. Some children received these services in the home, whereas others received the services in the classroom. Executive Summary of Services for 2006 – 2007 The mission of the Kentucky Autism Training Center is to enhance support for persons with autism by providing information and technical assistance to families and service providers across Kentucky. 1 KATC Annual Report 2006 – 2007 2 School-Based Team Consultations and Technical Assistance Sessions Kentucky Autism Training Center staff work directly with teams of professionals and parents to facilitate their development, implementation, and evaluation of educational and community-based programs for children and adolescents with autism. School systems, educational cooperatives, or individual schools can schedule workshops and application sessions. During this past year, our trainers worked with twenty-seven teams each consisting of educational personnel (e.g. special and regular educators, related service providers such as speech/language and occupational therapists, teaching assistants, psychologists) and families. Information Dissemination and Training KATC staff addressed approximately five hundred requests for information, resources, and services from families and professionals via in-person training and utilizing technology. Family members and professionals from across the Commonwealth share information, resources and support via the KATC Listserv and visit the KATC’s web-site. The KATC provides books, videos, and videos through our Amanda L. King Resource Center to families and professionals to citizens across the Commonwealth. In addition, the KATC presented at thirty-three events and professional development sessions across our Commonwealth during this past year. Topics addressed local concerns. Approximately eight hundred and fifty persons attended these seminars. To reach diverse areas across the state, the KATC hosted nine regional workshops, six in the fall and three in the spring. The KATC partnered with local educational agencies and mental health providers to deliver regional workshops. Overall attendance for the regional workshops was approximately five hundred and three. In collaboration with the Kentucky Department of Education the KATC hosted its 8th Annual Autism Institute. We were able to offer the approximately five hundred and seventy-three attendees nine different presentations from distinguished speakers from Kentucky and across the county. From an advanced training perspective, The KATC worked in conjunction with the University of Louisville Department Of Teaching and Learning to develop and implement a Distance Education Masters Program in Special Education with a concentration in Autism. During this past year, the KATC provided support and resources for the following graduate courses: Autism: An Introduction & Understanding, Augmentative Communication, Autism: Collaboration & Techniques and Applied Behavior Analysis. KATC Annual Report 2006 – 2007 “The number of individuals diagnosed with autism spectrum disorders (ASD) has grown exponentially in recent years both nationally and in the Commonwealth of Kentucky and is becoming a crisis that threatens to overwhelm public and private organizations devoted to the care and education of persons with disabilities.” Creating a More Secure Future for Kentuckians with Autism Spectrum Disorders A Recommended Plan From: The Kentucky Commission on Autism Spectrum Disorders Incidence of Students with Autism in Kentucky Autism is the most common of the Pervasive Developmental Disorders, affecting an estimated 1 in 150 births (Centers for Disease Control Prevention, 2007). In December of each year, the Kentucky Department of Education (KDE) counts the number of children under each diagnostic category. In 1997 when KATC began, there were approximately 546 children and youth identified in Kentucky as having autism. In the last KDE December Child Count (2006), the number increased to approximately 2,367 students as shown in Figure 1. Identification of Students with Autism KDE December Child Count 546 736 908 1032 1205 1378 1586 1783 2068 2367 0 500 1000 1500 2000 2500 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 Year Figure 1: Identification of Students with Autism (KDE December 2006 Child Count) 3 KATC Annual Report 2006 – 2007 “The number of individuals diagnosed with autism spectrum disorders (ASD) has grown exponentially in recent years both nationally and in the Commonwealth of Kentucky and is becoming a crisis that threatens to overwhelm public and private organizations devoted to the care and education of persons with disabilities.” Creating a More Secure Future for Kentuckians with Autism Spectrum Disorders A Recommended Plan From: The Kentucky Commission on Autism Spectrum Disorders Incidence of Students with Autism in Kentucky Autism is the most common of the Pervasive Developmental Disorders, affecting an estimated 1 in 150 births (Centers for Disease Control Prevention, 2007). In December of each year, the Kentucky Department of Education (KDE) counts the number of children under each diagnostic category. In 1997 when KATC began, there were approximately 546 children and youth identified in Kentucky as having autism. In the last KDE December Child Count (2006), the number increased to approximately 2,367 students as shown in Figure 1. Identification of Students with Autism KDE December Child Count 546 736 908 1032 1205 1378 1586 1783 2068 2367 0 500 1000 1500 2000 2500 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 Year Figure 1: Identification of Students with Autism (KDE December 2006 Child Count) 3 KATC Annual Report 2006 – 2007 The Kentucky Autism Training Center (KATC) was created when families realized the need for an autism resource center in Kentucky. Families began to research other centers around the country and spoke with then State Representative Robert Heleringer at a legislative breakfast for the Kentucky Disabilities Coalition in January of 1996. Rep. Heleringer was interested in the idea of an Autism Center in Kentucky and had the Legislative Research Commission examine similar bills adopted by other states. Information was given to Rep. Heleringer by families. On January 9, 1996, Rep. Heleringer introduced a bill to the Health and Welfare Committee. Rep. Tom Burch, the Committee Chair, co-sponsored the bill. In February 1996, the bill was passed by the House of Representatives and went to the Senate, where it was approved in April 1996. After the adoption of the bill, an advisory board was appointed that included families, professionals in the field of autism, and other citizens of the Commonwealth. The Child Evaluation Center within the Department of Pediatrics applied and was awarded the responsibilities of administering the autism center. In addition to the Child Evaluation Center, both the Bingham Child Guidance Center and the Department of Special Education within the College of Education and Human Development were internal partners regarding the formation of the Kentucky Autism Training Center. During 2002-2003, the Board elected a Chair and expanded on the KATC guidelines that currently include responsibilities for all members. These responsibilities include actively serving on sub-committees pertaining to specific areas of the Center’s activities. To assist with the oversight of the working subcommittees, an executive committee was formed which includes the chairs of the subcommittees, the Chair and Vice-Chair of the KATC Advisory Board and the KATC Director. In July of 2004, the College of Education and Human Development (CEHD), at the University of Louisville assumed the administrative responsibility of the Kentucky Autism Training Center. It is anticipated that the KATC under the CEHD will flourish through collaborative relationshipsandcreativepartnershipstowardsthemission of providing professional development, training and information dissemination to families and professionals across the Commonwealth. For additional information regarding the legislative intent of the Kentucky Autism Training Center, please refer to Kentucky Administrative Regulations at www.lrc.state.ky.us/kar/013/002/080.htm. History Of The Kentucky Autism Training Center 4 KATC Annual Report 2006 – 2007 The Kentucky Autism Training Center (KATC) was created when families realized the need for an autism resource center in Kentucky. Families began to research other centers around the country and spoke with then State Representative Robert Heleringer at a legislative breakfast for the Kentucky Disabilities Coalition in January of 1996. Rep. Heleringer was interested in the idea of an Autism Center in Kentucky and had the Legislative Research Commission examine similar bills adopted by other states. Information was given to Rep. Heleringer by families. On January 9, 1996, Rep. Heleringer introduced a bill to the Health and Welfare Committee. Rep. Tom Burch, the Committee Chair, co-sponsored the bill. In February 1996, the bill was passed by the House of Representatives and went to the Senate, where it was approved in April 1996. After the adoption of the bill, an advisory board was appointed that included families, professionals in the field of autism, and other citizens of the Commonwealth. The Child Evaluation Center within the Department of Pediatrics applied and was awarded the responsibilities of administering the autism center. In addition to the Child Evaluation Center, both the Bingham Child Guidance Center and the Department of Special Education within the College of Education and Human Development were internal partners regarding the formation of the Kentucky Autism Training Center. During 2002-2003, the Board elected a Chair and expanded on the KATC guidelines that currently include responsibilities for all members. These responsibilities include actively serving on sub-committees pertaining to specific areas of the Center’s activities. To assist with the oversight of the working subcommittees, an executive committee was formed which includes the chairs of the subcommittees, the Chair and Vice-Chair of the KATC Advisory Board and the KATC Director. In July of 2004, the College of Education and Human Development (CEHD), at the University of Louisville assumed the administrative responsibility of the Kentucky Autism Training Center. It is anticipated that the KATC under the CEHD will flourish through collaborative relationshipsandcreativepartnershipstowardsthemission of providing professional development, training and information dissemination to families and professionals across the Commonwealth. For additional information regarding the legislative intent of the Kentucky Autism Training Center, please refer to Kentucky Administrative Regulations at www.lrc.state.ky.us/kar/013/002/080.htm. History Of The Kentucky Autism Training Center 4 KATC Annual Report 2006 – 2007 The KATC has an Advisory Board that advises staff in matters of policy, staffing, and operation. Board members are committed to the growth of the Kentucky Autism Training Center as it strives towards its mission to enhance supports for persons with autism by providing information, training and technical assistance to families and service providers across Kentucky. Board members are actively involved in the development of collaborative relationships. Members also provide input and expertise in the development, implementation and evaluation of services provided by the KATC. Unless restricted by their employment, members will assist the KATC to procure funding, in addition to state general funds, to accomplish its mission to provide information, training and technical assistance. The composition of the board consists of families (50%), professionals (40%) and lay members (10%) from across the Commonwealth, as outlined in KRS 164.9811(2). Members have further defined the outlined membership categories as follows: Families Individuals who are family members of an individual with autism spectrum disorder. Professionals Individuals with professional experience and knowledge in regards to autism spectrum disorders, including representation from the Council on Postsecondary Education and the University of Louisville partners: Department of Pediatrics, University of Louisville Bingham Child Guidance Center, University of Louisville College of Education and Human Development, University of Louisville Layperson Individuals active in the community, not currently serving in a professional role. Kentucky Autism Training Center Advisory Board KATC Board members Cathy Durkan, Nat McKay, and Lauire Spezzano join Lt. Governor Steve Pence at “Ride On”. 5 KATC Annual Report 2006 – 2007 The KATC has an Advisory Board that advises staff in matters of policy, staffing, and operation. Board members are committed to the growth of the Kentucky Autism Training Center as it strives towards its mission to enhance supports for persons with autism by providing information, training and technical assistance to families and service providers across Kentucky. Board members are actively involved in the development of collaborative relationships. Members also provide input and expertise in the development, implementation and evaluation of services provided by the KATC. Unless restricted by their employment, members will assist the KATC to procure funding, in addition to state general funds, to accomplish its mission to provide information, training and technical assistance. The composition of the board consists of families (50%), professionals (40%) and lay members (10%) from across the Commonwealth, as outlined in KRS 164.9811(2). Members have further defined the outlined membership categories as follows: Families Individuals who are family members of an individual with autism spectrum disorder. Professionals Individuals with professional experience and knowledge in regards to autism spectrum disorders, including representation from the Council on Postsecondary Education and the University of Louisville partners: Department of Pediatrics, University of Louisville Bingham Child Guidance Center, University of Louisville College of Education and Human Development, University of Louisville Layperson Individuals active in the community, not currently serving in a professional role. Kentucky Autism Training Center Advisory Board KATC Board members Cathy Durkan, Nat McKay, and Lauire Spezzano join Lt. Governor Steve Pence at “Ride On”. 5 KATC Annual Report 2006 – 2007 2006 – 2007 Membership of the Kentucky Autism Training Center Advisory Board Thomas Pinkstaff, M.D. Layperson Fayette County Grandparent Faculty Member in the Department Pediatrics at the University of Louisville and the University of Kentucky Diane Cowne Parent Oldham County Laurie Spezzano Parent Oldham County Wendy Ann Everly Parent Muhlenberg County Nat McKay Parent Oldham County Cheryl Dunn Parent Calloway County Barbara Lewis Parent Jefferson County Anne Gregory Parent Jefferson County Rita Brockmeyer Parent Madison County Cathy Durkan Parent Hardin County Rhonda Hedges Professional Principal of the Binet School Jefferson County Schools Peter Tanguay, M.D. Professional Emeritus Professor of Psychiatry Bingham Child Guidance Center University of Louisville Retired Sue Daniel Professional Early Childhood Professional Retired Melissa Ferrell Professional Exceptional Child Consultant Division of Curriculum Development Kentucky Department of Education Carol Estes Professional Program Administrator Supported Employment Vocational Rehabilitation Tricia Bronger Professional Instructor Department of Teaching and Learning University of Louisville Joseph Hersh, M.D. Professional Director Weisskopf Center for the Evaluation of Children Rick Hudson, Ph.D. Professional Dean of Student Life and Development Spalding University Linda Linville, Ph.D. Professional Senior Fellow Council on Postsecondary Education 6 KATC Annual Report 2006 – 2007 2006 – 2007 Membership of the Kentucky Autism Training Center Advisory Board Thomas Pinkstaff, M.D. Layperson Fayette County Grandparent Faculty Member in the Department Pediatrics at the University of Louisville and the University of Kentucky Diane Cowne Parent Oldham County Laurie Spezzano Parent Oldham County Wendy Ann Everly Parent Muhlenberg County Nat McKay Parent Oldham County Cheryl Dunn Parent Calloway County Barbara Lewis Parent Jefferson County Anne Gregory Parent Jefferson County Rita Brockmeyer Parent Madison County Cathy Durkan Parent Hardin County Rhonda Hedges Professional Principal of the Binet School Jefferson County Schools Peter Tanguay, M.D. Professional Emeritus Professor of Psychiatry Bingham Child Guidance Center University of Louisville Retired Sue Daniel Professional Early Childhood Professional Retired Melissa Ferrell Professional Exceptional Child Consultant Division of Curriculum Development Kentucky Department of Education Carol Estes Professional Program Administrator Supported Employment Vocational Rehabilitation Tricia Bronger Professional Instructor Department of Teaching and Learning University of Louisville Joseph Hersh, M.D. Professional Director Weisskopf Center for the Evaluation of Children Rick Hudson, Ph.D. Professional Dean of Student Life and Development Spalding University Linda Linville, Ph.D. Professional Senior Fellow Council on Postsecondary Education 6 KATC Annual Report 2006 – 2007 KATC staff members provided family-based technical assistance and consultation to families of children, youth, and adults across Kentucky. The purpose of these activities is to prepare families to become active members of their children’s local educational and planning teams, promote independence and address quality of life issues. Families can directly access and utilize KATC through the following services: Family Consultations KATC staff members provided family members opportunities to meet with a KATC staff member to receive information, and to address general questions and concerns in a confidential manner. The KATC does not charge families for this service. During this past year, KATC staff members conducted thirty-eight individual family support sessions to families who live in the following counties: FAMILY-BASED TRAINING AND TECHNICAL ASSISTANCE Barren Bath Boyd Breckenridge Bullitt Campbell Fayette Franklin Grayson Hardin Jefferson Laurel Metcalfe Nelson Oldham Perry Pike Rowan Scott 7 KATC Annual Report 2006 – 2007 KATC staff members provided family-based technical assistance and consultation to families of children, youth, and adults across Kentucky. The purpose of these activities is to prepare families to become active members of their children’s local educational and planning teams, promote independence and address quality of life issues. Families can directly access and utilize KATC through the following services: Family Consultations KATC staff members provided family members opportunities to meet with a KATC staff member to receive information, and to address general questions and concerns in a confidential manner. The KATC does not charge families for this service. During this past year, KATC staff members conducted thirty-eight individual family support sessions to families who live in the following counties: FAMILY-BASED TRAINING AND TECHNICAL ASSISTANCE Barren Bath Boyd Breckenridge Bullitt Campbell Fayette Franklin Grayson Hardin Jefferson Laurel Metcalfe Nelson Oldham Perry Pike Rowan Scott 7 Carrie Gabbard and Emily Kirkham at a Tool Box session 8 Carrie Gabbard and Emily Kirkham at a Tool Box session Tool Box Series for Families The goal of the Tool Box Series is to provide families and professionals with practical strategies, techniques and resources. Through this series, the KATC provided relevant information that could enhance the home, community and school life of individuals with ASD. The tool box series was held in the fall of 2006 and spring of 2007. Approximately, one hundred and sixty individuals were in attendance at the Tool Box Sessions. Attendees resided in the following counties: Figure 2: Tool Box Series Presentation Topics, Speakers and Dates Boone Boyle Daviess Franklin Gallatin Grayson Hardin Jefferson Laurel Mercer Madison Nelson Oldham Pulaski Presentation Topic Speaker Date “Understanding those Behaviors” James Adkins September 2006 “What to do about those behaviors” James Adkins September 2006 “Visual Supports Make/Take” Carrie Gabbard and Emily Kirkham October 2006 “Daytime Toilet Training” Emily Kirkham October 2006 “Social Skills and Social Stories” Carrie Gabbard November 2006 “Exploring Assistive Technology” Carrie Gabbard November 2006 “Community Resources, The ABC’s of Behavior and Simple Strategies for the Home” Carrie Gabbard, Emily Kirkham, Home of the Innocents and STAR Program. April 2007 “Community Resources, The ABC’s of Behavior and Simple Strategies for the Home” Carrie Gabbard, Emily Kirkham, Home of the Innocents and the STAR Program May 2007 9 9 KATC Annual Report 2006 – 2007 Below is summary of evaluation data from participants of the KATC’s Tool Box Series. Fifty-five participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: Figure 3: Tool Box Series Participant Evaluation Data • To what degree did the presentation improve your understanding of autism? • To what degree did the presentation meet your expectations? • To what degree did the consultant provide useful information? • To what degree did the consultation provide relevant resources? • To what degree did the consultant provide allow adequate time for questions? The Toolbox Series n = 55 5 4 3 2 1 0 Understanding Meet Use Information Relevent Time for Autism Expectations Resources Questions “The Tool Box seminar gave me hope for my son, Aaron. After the seminar I went straight to [the store] and bought materials to create a communication board for Aaron. In a world of doctors and other professionals only telling you what your child will never do; the Tool Box Seminar was definitely a ray of hope. It opened my eyes and I am now able to see my son in a different light.” Deborah Lucas, Mother, Jefferson County KATC Annual Report 2006 – 2007 Promoting Positive Behavior and Functional Communication for Children with Autism — a project sponsored by the WHAS Crusade for Children This year the Kentucky Autism Training Center was awarded its first grant from the WHAS Crusade for Children. The focus of this grant was to establish the project, Promoting Positive Behavior and Functional Communication for Children with Autism. During the grant period, which began in September 2006, the children with autism we have served are between the ages of two and thirteen. The KATC has worked intensively with 15 children with autism, conducting a total of 125 sessions of functional behavioral assessment interviews, functional analyses, and treatment sessions. Some children received these services in the home, whereas others received the services in the classroom. After a thorough assessment, each child participated in a functional communication program that taught the child to use new ways to communicate wants and needs instead of using problem behavior. For each child, there was a substantial decrease in problem behavior and an increase in functional communication from baseline through final intervention. The project was unique in that the children received the intensive training at no cost to their families. In addition, many of the families live in rural, underserved counties around the state, where services are not typically available. The hands-on training and coaching parents and teachers received taught them effective strategies they can now use in their daily interactions with their children. The post-intervention survey results indicated positive outcomes with both the parents and teachers that participated in the grant project, as detailed below in Figure 4. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity. Questions included: • Towhatdegreedidtheserviceshelpeducateyourfamily about your child’s behavior? •Towhatdegreedidtheserviceshelpeducateyourfamily about the interventions used with your child? • Howconfidentareyouthatthetreatment/serviceswill have permanent positive effects on your child’s behavior? • Howwillingisyourfamilytocontinuethebehavioralinterventions without staff assistance? • Towhatdegreehastheproject/servicesmadeapositive effect on your family’s life? • Towhatdegreedoyoufindtheinterventionsappropriate for your child? • Overall,towhatextentdoyoufeeltheserviceshavebeen helpful to your family and child? WHAS Crusade for Children Project: Promoting Positive Behavior and Functional Communication for Children with Autism n=8 0 1 2 3 4 5 Educate family aboutbehavior Educate family aboutinterventions Confidentthat treatment/services will have permanentpositive effectchild's behavior Familycontinue behavioral interventions withoutstaff assistance Project/services made a positive effecton familylife Interventions appropriate for your child Overall,helpful to your familyand child Figure 4: WHAS Crusade for Children Project: Promoting Positive Behavior and Functional Communication for Children with Autism Evaluation Data 10 KATC staff receive a check from Rebecca Jackson of the WHAS Crusade for Children. KATC Annual Report 2006 – 2007 Promoting Positive Behavior and Functional Communication for Children with Autism — a project sponsored by the WHAS Crusade for Children This year the Kentucky Autism Training Center was awarded its first grant from the WHAS Crusade for Children. The focus of this grant was to establish the project, Promoting Positive Behavior and Functional Communication for Children with Autism. During the grant period, which began in September 2006, the children with autism we have served are between the ages of two and thirteen. The KATC has worked intensively with 15 children with autism, conducting a total of 125 sessions of functional behavioral assessment interviews, functional analyses, and treatment sessions. Some children received these services in the home, whereas others received the services in the classroom. After a thorough assessment, each child participated in a functional communication program that taught the child to use new ways to communicate wants and needs instead of using problem behavior. For each child, there was a substantial decrease in problem behavior and an increase in functional communication from baseline through final intervention. The project was unique in that the children received the intensive training at no cost to their families. In addition, many of the families live in rural, underserved counties around the state, where services are not typically available. The hands-on training and coaching parents and teachers received taught them effective strategies they can now use in their daily interactions with their children. The post-intervention survey results indicated positive outcomes with both the parents and teachers that participated in the grant project, as detailed below in Figure 4. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity. Questions included: • Towhatdegreedidtheserviceshelpeducateyourfamily about your child’s behavior? •Towhatdegreedidtheserviceshelpeducateyourfamily about the interventions used with your child? • Howconfidentareyouthatthetreatment/serviceswill have permanent positive effects on your child’s behavior? • Howwillingisyourfamilytocontinuethebehavioralinterventions without staff assistance? • Towhatdegreehastheproject/servicesmadeapositive effect on your family’s life? • Towhatdegreedoyoufindtheinterventionsappropriate for your child? • Overall,towhatextentdoyoufeeltheserviceshavebeen helpful to your family and child? WHAS Crusade for Children Project: Promoting Positive Behavior and Functional Communication for Children with Autism n=8 0 1 2 3 4 5 Educate family aboutbehavior Educate family aboutinterventions Confidentthat treatment/services will have permanentpositive effectchild's behavior Familycontinue behavioral interventions withoutstaff assistance Project/services made a positive effecton familylife Interventions appropriate for your child Overall,helpful to your familyand child Figure 4: WHAS Crusade for Children Project: Promoting Positive Behavior and Functional Communication for Children with Autism Evaluation Data 10 KATC staff receive a check from Rebecca Jackson of the WHAS Crusade for Children. KATC Annual Report 2006 – 2007 Family-Based Training During this past year at the request of support groups across the Commonwealth, KATC staff delivered six workshops to the following family-based organizations in Danville, London and Floyd County area to approximately one-hundred and twenty attendees. Topics included: Curriculum Modifications Educational Issues Hidden Curriculum and Social Understanding Sibling/Family Issues If the KATC cannot speak on a requested topic, then the KATC will work with a group to identify potential speakers. Currently, the KATC does not address medical issues. “KATC offered a several workshops in our area over the past several years that were excellent. There was a wide variety of topics offered that were beneficial to families, teachers, therapists, etc. It was wonderful to be able to have such a valuable resource right here in my hometown and not have to travel several hours to and from the sessions. Our support group and the many folks that teach or assist our children have greatly benefitted from all the programming that KATC has provided both locally and in the state.” Melissa Caudill, Boyle County 11 Emily Kirkham at a Family Training Session. KATC Annual Report 2006 – 2007 Family-Based Training During this past year at the request of support groups across the Commonwealth, KATC staff delivered six workshops to the following family-based organizations in Danville, London and Floyd County area to approximately one-hundred and twenty attendees. Topics included: Curriculum Modifications Educational Issues Hidden Curriculum and Social Understanding Sibling/Family Issues If the KATC cannot speak on a requested topic, then the KATC will work with a group to identify potential speakers. Currently, the KATC does not address medical issues. “KATC offered a several workshops in our area over the past several years that were excellent. There was a wide variety of topics offered that were beneficial to families, teachers, therapists, etc. It was wonderful to be able to have such a valuable resource right here in my hometown and not have to travel several hours to and from the sessions. Our support group and the many folks that teach or assist our children have greatly benefitted from all the programming that KATC has provided both locally and in the state.” Melissa Caudill, Boyle County 11 Emily Kirkham at a Family Training Session. KATC Annual Report 2006 – 2007 Family Focus Positive Behavior Support: A Pilot Project The Kentucky Autism Training Center developed a pilot project modeled after the Family Focus Positive Behavior Supports (FFPBS) model used by Marshall University. A KATC field training coordinator delivered services associated with the FFPBS model to the team of thirteen year old Adam Price and his parents, Tim and Julie. The Price family lives in Pulaski County. Adam was selected for the pilot FFPBS project because of his aggressive and potentially dangerous behaviors. Adam did not have meaningful or functional communication for most of his needs, though he does know some limited sign language. Person-Centered Planning (PCP) The FFPBS process began with the family/person centered meeting with the family in their home to utilize a tool called “The Family Frames”. The purpose of this tool is to learn more about the family. The next step, Planning Alternative Tomorrows with Hope (P.A.T.H). involved the team meeting to identify supports for the family and child. The P.A.T.H. is a path or road map to success. Here began optimistic views of the dream Adam may have as described by the people who care for his vision of life. Formal Lectures and Small Team Meetings The training process for the immediate family, team, school and mental health professionals and community members consisted of a workshop series in Pulaski County. To accommodate schedules and training needs the series was delivered twice. The content of the training series included: understandingautism,ABAandhumanbehavior,functional behavior assessment process, Positive Behavior Support, teaching and learning style adaptations, social skills and understanding considerations, and development of a comprehensive Positive Behavior Support Plan. This training series delivered in conjunction with Adams’s monthly small team meetings gave team members an opportunity to apply knowledge gained in the lecture series and discuss program development for Adam. On the next page is a summary of evaluation data from participants of the KATC’s Tool Box Series. Fifty-five participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete 12 KATC Annual Report 2006 – 2007 Family Focus Positive Behavior Support: A Pilot Project The Kentucky Autism Training Center developed a pilot project modeled after the Family Focus Positive Behavior Supports (FFPBS) model used by Marshall University. A KATC field training coordinator delivered services associated with the FFPBS model to the team of thirteen year old Adam Price and his parents, Tim and Julie. The Price family lives in Pulaski County. Adam was selected for the pilot FFPBS project because of his aggressive and potentially dangerous behaviors. Adam did not have meaningful or functional communication for most of his needs, though he does know some limited sign language. Person-Centered Planning (PCP) The FFPBS process began with the family/person centered meeting with the family in their home to utilize a tool called “The Family Frames”. The purpose of this tool is to learn more about the family. The next step, Planning Alternative Tomorrows with Hope (P.A.T.H). involved the team meeting to identify supports for the family and child. The P.A.T.H. is a path or road map to success. Here began optimistic views of the dream Adam may have as described by the people who care for his vision of life. Formal Lectures and Small Team Meetings The training process for the immediate family, team, school and mental health professionals and community members consisted of a workshop series in Pulaski County. To accommodate schedules and training needs the series was delivered twice. The content of the training series included: understandingautism,ABAandhumanbehavior,functional behavior assessment process, Positive Behavior Support, teaching and learning style adaptations, social skills and understanding considerations, and development of a comprehensive Positive Behavior Support Plan. This training series delivered in conjunction with Adams’s monthly small team meetings gave team members an opportunity to apply knowledge gained in the lecture series and discuss program development for Adam. On the next page is a summary of evaluation data from participants of the KATC’s Tool Box Series. Fifty-five participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete 12 KATC Annual Report 2006 – 2007 dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: • Towhatdegreedidthepresentationimproveyourunderstanding of autism? • Towhatdegreedidthepresentationmeetyourexpectations? • Towhatdegreedidtheconsultantprovideusefulinformation? • Towhatdegreedidtheconsultationproviderelevantresources? • Towhatdegreedidtheconsultantprovideallowadequate time for questions? “Not only has Adam’s quality of life really improved but the quality of life for us as a family is much, much better…” Julie Price, Adam’s Mother “I especially liked meeting with all the stakeholders on a regular basis. Adam has improved a great deal and I attribute it to the suggestions and follow through with ideas from his team members.” Shelly Hargis, Vice Principal Northern Middle School Figure 5: Family Focused Positive Behavior Supports Lecture Series Evaluation Data Family Focused Positive Behavior Supports Lecture Series n = 54 0 1 2 3 4 5 Understanding Autism Meet Expectations Use Information Relevant Resources Time for Questions 13 KATC Annual Report 2006 – 2007 dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: • Towhatdegreedidthepresentationimproveyourunderstanding of autism? • Towhatdegreedidthepresentationmeetyourexpectations? • Towhatdegreedidtheconsultantprovideusefulinformation? • Towhatdegreedidtheconsultationproviderelevantresources? • Towhatdegreedidtheconsultantprovideallowadequate time for questions? “Not only has Adam’s quality of life really improved but the quality of life for us as a family is much, much better…” Julie Price, Adam’s Mother “I especially liked meeting with all the stakeholders on a regular basis. Adam has improved a great deal and I attribute it to the suggestions and follow through with ideas from his team members.” Shelly Hargis, Vice Principal Northern Middle School Figure 5: Family Focused Positive Behavior Supports Lecture Series Evaluation Data Family Focused Positive Behavior Supports Lecture Series n = 54 0 1 2 3 4 5 Understanding Autism Meet Expectations Use Information Relevant Resources Time for Questions 13 KATC Annual Report 2006 – 2007 Staff members of the Kentucky Autism Training Center worked with teams of professionals and families to facilitate the development, implementation, and evaluation of educational and community-based programs for students with autism. Based on feedback from educators the KATC has developed three service models to meet the needs of school districts seeking consultation and training. Below are brief outlines of these service models: Comprehensive Team Consultation The goals of a Comprehensive Team Consultation are to provide local educational teams with tools, strategies, and specialized skills needed to build a school environment that meets the unique learning needs of students with autism, and to promote a student’s access to the Core Curriculum. Classroom Consultation The goals of a Classroom Consultation are provide a classroom teacher with the tools, strategies, and specialized skills needed to build a classroom environment that meets the unique learning needs of students with autism and promote access to the Core Curriculum. Focused Consultation The goal of a Focused Consultation is to assist a local educational team or professional in implementing a focused skill, or strategy (e.g. completing a functional behavior analysis, incorporating communication systems, and implementing visual supports). During this past year KATC staff conducted approximately ninety school based consultations, technical assistance and training activities in the following local educational agencies: Bardstown Independent Schools Boone County Schools Bowling Green Independent Schools Boyle County Schools Corbin Independent Schools Green County Schools Hancock County Schools Hardin County Schools Jefferson County Schools Madison County Schools Meade County Schools Russellville Independent Schools Taylor County Schools Warren County Schools School-Based Team Consultations and Technical Assistance Sessions 14 KATC Annual Report 2006 – 2007 Staff members of the Kentucky Autism Training Center worked with teams of professionals and families to facilitate the development, implementation, and evaluation of educational and community-based programs for students with autism. Based on feedback from educators the KATC has developed three service models to meet the needs of school districts seeking consultation and training. Below are brief outlines of these service models: Comprehensive Team Consultation The goals of a Comprehensive Team Consultation are to provide local educational teams with tools, strategies, and specialized skills needed to build a school environment that meets the unique learning needs of students with autism, and to promote a student’s access to the Core Curriculum. Classroom Consultation The goals of a Classroom Consultation are provide a classroom teacher with the tools, strategies, and specialized skills needed to build a classroom environment that meets the unique learning needs of students with autism and promote access to the Core Curriculum. Focused Consultation The goal of a Focused Consultation is to assist a local educational team or professional in implementing a focused skill, or strategy (e.g. completing a functional behavior analysis, incorporating communication systems, and implementing visual supports). During this past year KATC staff conducted approximately ninety school based consultations, technical assistance and training activities in the following local educational agencies: Bardstown Independent Schools Boone County Schools Bowling Green Independent Schools Boyle County Schools Corbin Independent Schools Green County Schools Hancock County Schools Hardin County Schools Jefferson County Schools Madison County Schools Meade County Schools Russellville Independent Schools Taylor County Schools Warren County Schools School-Based Team Consultations and Technical Assistance Sessions 14 KATC Annual Report 2006 – 2007 Quarterly evaluations are sent to the team leader at the school as well as the families/guardians of each educational team and we ask that they be completed and mailed back to the KATC. We are striving to continually evolve and improve upon the school consultation model and are eager to incorporate suggestions from team members (including families) in the evolution of our school-based services. Below is summary of evaluation data from participants in the KATC’s School Based Team Consultations. Twelve participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: • Towhatdegreewasthepresentationscheduledinan efficient manner? • Towhatdegreedidtheconsultantprovideadequatetime for questions? • Towhatdegreedidtheconsultationincreaseyourknowledge of autism? • Towhatdegreedidtheconsultantprovidestrategiesand techniques for the educational team? 100% of respondents indicated they had a better understanding of the student after the school consultation process. Figure 6: School Consultation Evaluation Data School Consultation -General Information n = 12 0 1 2 3 4 5 Scheduling Ask Questions Gain More Information Provide Ideas for Strategies 15 KATC Annual Report 2006 – 2007 Quarterly evaluations are sent to the team leader at the school as well as the families/guardians of each educational team and we ask that they be completed and mailed back to the KATC. We are striving to continually evolve and improve upon the school consultation model and are eager to incorporate suggestions from team members (including families) in the evolution of our school-based services. Below is summary of evaluation data from participants in the KATC’s School Based Team Consultations. Twelve participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: • Towhatdegreewasthepresentationscheduledinan efficient manner? • Towhatdegreedidtheconsultantprovideadequatetime for questions? • Towhatdegreedidtheconsultationincreaseyourknowledge of autism? • Towhatdegreedidtheconsultantprovidestrategiesand techniques for the educational team? 100% of respondents indicated they had a better understanding of the student after the school consultation process. Figure 6: School Consultation Evaluation Data School Consultation -General Information n = 12 0 1 2 3 4 5 Scheduling Ask Questions Gain More Information Provide Ideas for Strategies 15 “A great resource for teachers and parents.” Teacher “Through the consultation I came to realize the importance of scheduling and communication strategies with my student.” Teacher “I found the most helpful aspects of the school consultation to be the hands-on approach to working with the student, the flexibility of the consultant and the availability of the resources.” Teacher “I only wish work with my son had started earlier.” – Parent I could be more productive as a teacher; more direct in my teaching. My student with autism could be more productive.” Teacher “A great resource for teachers and parents.” Teacher “Through the consultation I came to realize the importance of scheduling and communication strategies with my student.” Teacher “I found the most helpful aspects of the school consultation to be the hands-on approach to working with the student, the flexibility of the consultant and the availability of the resources.” Teacher “I only wish work with my son had started earlier.” – Parent I could be more productive as a teacher; more direct in my teaching. My student with autism could be more productive.” Teacher KATC Annual Report 2006 – 2007 16 In an effort to collect specific data relevant to the school based technical assistance and training that were provided to the team, the figure below represents the questions; “To what degree did the consultation prepare the team to implement the strategies” and “To what degree did the consultation impact the student’s acquisition of the strategies” in the areas of Social Skills, Visual Supports, Academic Skills, Communication Skills and Implementing Toilet Training Skills. At the end of the 2006-2007 school years, twenty-seven teams had received school consultation services from eight districts across Kentucky. Three classroom consultations were completed in acounty in Kentucky. These classrooms were labeled autism units and were comprised of at least ten students with autism. There were two students on a waiting list to receive services. Figure 7: School Consultation - Target Areas Evaluation Data School Consultation - Priority Areas Targeted n = 12 0 1 2 3 4 5 Social Skills Visual Supports Academic Communication Toileting Prepare the Team to Implement the Strategies Impact the Student’s Aquisition of the Strategies KATC Annual Report 2006 – 2007 Information Dissemination KATC staff members worked to establish statewide supports and training activities for professionals and families involved in promoting gains for individuals with autism by offering the following resources and services: Amanda L. King Resource Center The Amanda L. King Resource Center is located in the Kentucky Autism Training Center offices at 911 S. Brook Street. The resource center is a collection of materials pertaining to autism spectrum disorders, special education, health and employment issues available for checkout to families and professionals across the state of Kentucky. In the past year 189 additional titles have been added to the collection. Using the Resource Center Request Form, patrons list the titles they are interested in checking out. If patrons are unsure of a specific title but are interested in particular topic, they can contact KATC staff for suggested materials. Patrons mail the completed form to the KATC. Once their form is received we will mail the requested materials to the patron. There is currently no charge to use the services of the resource center. The year KATC staff addressed approximately five hundred requests for materials through the Amanda L. King Resource Center. “As a parent, one of the first, and most important things you can do after your child has been diagnosed is learn as much as you can about the disability. The more information you have, the more empowered you will become in seeking and obtaining the appropriate interventions for your child. The KATC Amanda King Resource Center offers families access to a large array of both current and past publications/videos that may not be readily available in their area.” – Nat McKay, Mother, Oldham County “The resource center at Kentucky Autism Training Center is the most significant source of current, practical, and useful information available locally to families like mine. The KATC center is a crucial resource because it enables parents to access materials that go beyond the basic information about autism that one finds in books at the public center. In fact, many of the systems and techniques we use at home that have been successful with our son have been gleaned from resource center materials.” – Suzanne De Gregorio, Mother, Jefferson County “The KATC Resource library has been a great resource for our family, it’s so easy to check items out and return them and we live 2.5 hours away. If there is a resource we needed that wasn’t available right away, someone there would suggest other material which led us to other sources… We have just loved using this service.” Angela Parman, Mother, Laurel County “Living in an area that has extremely limited access to resources forces a parent to search elsewhere for educational information on Autism. We have found a valuable resource in the Amanda King Resource Library at the KATC. We have quick and easy access to books and videos that are impossible to get in our area, and can receive them via the mail. This service has been an exceptional tool in educating ourselves to better help our son with Autism.” Wendy Everly, Mother, Muhlenberg County 17 KATC Annual Report 2006 – 2007 Information Dissemination KATC staff members worked to establish statewide supports and training activities for professionals and families involved in promoting gains for individuals with autism by offering the following resources and services: Amanda L. King Resource Center The Amanda L. King Resource Center is located in the Kentucky Autism Training Center offices at 911 S. Brook Street. The resource center is a collection of materials pertaining to autism spectrum disorders, special education, health and employment issues available for checkout to families and professionals across the state of Kentucky. In the past year 189 additional titles have been added to the collection. Using the Resource Center Request Form, patrons list the titles they are interested in checking out. If patrons are unsure of a specific title but are interested in particular topic, they can contact KATC staff for suggested materials. Patrons mail the completed form to the KATC. Once their form is received we will mail the requested materials to the patron. There is currently no charge to use the services of the resource center. The year KATC staff addressed approximately five hundred requests for materials through the Amanda L. King Resource Center. “As a parent, one of the first, and most important things you can do after your child has been diagnosed is learn as much as you can about the disability. The more information you have, the more empowered you will become in seeking and obtaining the appropriate interventions for your child. The KATC Amanda King Resource Center offers families access to a large array of both current and past publications/videos that may not be readily available in their area.” – Nat McKay, Mother, Oldham County “The resource center at Kentucky Autism Training Center is the most significant source of current, practical, and useful information available locally to families like mine. The KATC center is a crucial resource because it enables parents to access materials that go beyond the basic information about autism that one finds in books at the public center. In fact, many of the systems and techniques we use at home that have been successful with our son have been gleaned from resource center materials.” – Suzanne De Gregorio, Mother, Jefferson County “The KATC Resource library has been a great resource for our family, it’s so easy to check items out and return them and we live 2.5 hours away. If there is a resource we needed that wasn’t available right away, someone there would suggest other material which led us to other sources… We have just loved using this service.” Angela Parman, Mother, Laurel County “Living in an area that has extremely limited access to resources forces a parent to search elsewhere for educational information on Autism. We have found a valuable resource in the Amanda King Resource Library at the KATC. We have quick and easy access to books and videos that are impossible to get in our area, and can receive them via the mail. This service has been an exceptional tool in educating ourselves to better help our son with Autism.” Wendy Everly, Mother, Muhlenberg County 17 KATC Annual Report 2006 – 2007 Newsletter The KATC distributes a newsletter electronically to thousands of families and professionals. In the Commonwealth, the KATC newsletter is sent to the KATC Listserv, family organizations, Autism Spectrum Disorders Advisory Consortium, Educators & Education Organizations, Early Childhood Professionals, Professional Organizations, Family Resource and Youth Services Centers, mental health professionals and supported employment providers across the Commonwealth. The newsletter contains information regarding the services of KATC, activities of autism related support groups, strategies and information regarding other organizations serving individuals with autism spectrum disorders and their families across the Commonwealth. KATC LISTSERV Individuals from across the Commonwealth are also members of the KATC’s listserv. Members share information on research, resources, up-coming events, trainings, workshops, support groups, disability related information and other useful information for families and professionals in the autism community. As of June 2007, the KATC listserv has approximately five hundred members. Web-Site The KATC web site is located at www. louisville.edu/education/kyautismtraining. During this past year the KATC website has been updated to include additional resources specific to Kentucky and other autism related information. Professional Development Sessions KATC staff members conducted professional development workshops on autism spectrum disorders and effective strategies for families and professionals at 34 local, regional, state and national conferences for the organizations listed below: Adanta Autism Awareness Carnival Binet School Information Fair Christian Care Communities Crestwood Baptist Church Special Needs Community Fair Department of Mental Health and Mental Retardation Dreams with Wings Early Childhood Conference Eliahu Academy Four Rivers Behavioral Health Interdisciplinary Human Development Institute, University of Kentucky Jefferson Community College Kentucky Department of Education’s Behavior Institute Kentuckiana Council for Psychiatric Nurses Kentucky Ambulance Providers Association Kentucky Valley Educational Cooperative Local Youth Group Leaders Madison County Public Schools Council on Exceptional Children University of Louisville, College of Education and Human Development, Graduate Classes Simpson County Regional Training Center Symposium Upper Cumberland Educational Cooperative Western Kentucky Provider Alliance Wilderness Trail Special Education Cooperative 1 KE N T U C KY AUT I SM TRA I NIN G CE N T E R Ne wsletter of the The mission of the Kentucky Autism Training Center is to enhance supports for persons with autism by providing information and technical assistance to families and service providers across Kentucky. Issue 20, 2007 In this Issue: Book Review by Diane Cowne: Born on a Blue Day ....................................2 Amanda L. King Resource Library ................................................................2 Tools, Tips, Ideas and Inspiration for Teachers ............................................3 Natalie Pope: Autism Awareness License Plate...........................................4 To Reinforce or Not to Reinforce ..................................................................4 Autism Institute Preview by Diane Twatchman-Cullen: The Importance of INFORMED Paraprofessional Support ..........................5 Dr. Scott Bellini to Lead Workshop at KATC Autism Institute........................6 Special Report: Prevalence of Autism Disorders in Multiple Areas of the United States ..............................................................7 Calendar of Events ......................................................................................10 Regional Wrap-Up 11 Autism Institute 2007 Schedule and Registration ......................................13 If you have any questions or concerns about this issue, please contact: Rebecca Grau, MPA Editor Rebecca.Grau@louisville.edu Phone: 502-852-4631 Kentucky Autism Training Center 911 South Brook Street Louisville KY 40203 Spring The University of Louisville is an equal opportunity institution. 8th Annual Autism Institute June 20–22, 2007 Galt House, Louisville, KY HostedbytheUniversityofLouisville’s Kentucky Autism TrainingCenter, CollegeofEducationandHuman Development Featuring strategies andtechniquesto enhancethelives ofindividualsaffectedbyautism. Register nowat: www.louisville.edu/kyautismtraining/ orcall502-852-2467 Join UsJoin Us 18 KATC Annual Report 2006 – 2007 Topics discussed included: Autism and Principals of Behavior Addressing Challenging Behaviors and Adolescent Issues Autism and Asperger’s Common Educational Strategies Autism Awareness Autism Boot Camp Autism Resources Curriculum Modifications Picture-Based Communication Systems Positive Behavioral Supports Series (Four Parts) Visual Supports What is Autism? Below is summary of evaluation data from participants of the KATC’s Professional Development Sessions. There were 375 completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: • Towhatdegreedidthepresentationimproveyourunderstanding of autism? • Towhatdegreedidthepresentationmeetyourexpectations? • Towhatdegreedidtheconsultantprovideusefulinformation? • Towhatdegreedidtheconsultationproviderelevantresources? • Towhatdegreedidtheconsultantprovideallowadequate time for questions? “The presenter provided us with information, resources, and great ideas that I can take back to school and implement immediately. I also learned some very good communication techniques that I can go home and use with my 6 year old son that has Asperger’s Syndrome.” Figure 8: 2006-2007 Professional Development Sessions Evaluation Data Professional Presentations 2007 n = 375 0 1 2 3 4 5 Understanding of Autism Meet Expectations Use Information Relevant Resources Time for Questions 19 KATC Annual Report 2006 – 2007 Topics discussed included: Autism and Principals of Behavior Addressing Challenging Behaviors and Adolescent Issues Autism and Asperger’s Common Educational Strategies Autism Awareness Autism Boot Camp Autism Resources Curriculum Modifications Picture-Based Communication Systems Positive Behavioral Supports Series (Four Parts) Visual Supports What is Autism? Below is summary of evaluation data from participants of the KATC’s Professional Development Sessions. There were 375 completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open- ended questions. Sample questions are as follows: • Towhatdegreedidthepresentationimproveyourunderstanding of autism? • Towhatdegreedidthepresentationmeetyourexpectations? • Towhatdegreedidtheconsultantprovideusefulinformation? • Towhatdegreedidtheconsultationproviderelevantresources? • Towhatdegreedidtheconsultantprovideallowadequate time for questions? “The presenter provided us with information, resources, and great ideas that I can take back to school and implement immediately. I also learned some very good communication techniques that I can go home and use with my 6 year old son that has Asperger’s Syndrome.” Figure 8: 2006-2007 Professional Development Sessions Evaluation Data Professional Presentations 2007 n = 375 0 1 2 3 4 5 Understanding of Autism Meet Expectations Use Information Relevant Resources Time for Questions 19 KATC Annual Report 2006 – 2007 “I have gained a deeper understanding of every action having or being a function that is meaningful to a person with Autism.” “I have more tools to use with working with individuals with autism and have a better understanding of the issues related to autism.” “The presenter made me see the possibilies of educating my students with autism in the regular classroom, I feel empowered.” Regional Workshops The goal of KATC’s regional workshops was to include information that was useful to both families and professionals ”close to home”. KATC staff are aware that many individuals across the Commonwealth have limited time and resources to travel significant distances to receive information on “best practices”. To reach diverse areas across the state, the KATC delivered nine regional workshops around Kentucky. Five hundred and three professionals, paraprofessionals/instructional assistants, family members and full time students from sixty counties in Kentucky, and two counties in Indiana were in attendance. Participants attending the Regional Workshops resided in the following counties: Anderson Barren Bell Boone Boyd Boyle Bracken Breckenridge Butler Calloway Campbell Carroll Carter Christian Clark (IN) Clinton Daviess Elliott Floyd Franklin Grant Graves Greenup Hardin Hart Henry Hopkins Jackson Jefferson Kenton Knott Laurel Lawrence Letcher Lewis Madison Magoffin Marshall McCracken Meade Mercer Muhlenberg Nelson Ohio Ohio (IN) Oldham Owen Pendleton Perry Pike Pulaski Robertson Rockcastle Rowan Scott Shelby Spencer Warren Webster Whitley 20 Emily Kirkham provides hands-on training. KATC Annual Report 2006 – 2007 “I have gained a deeper understanding of every action having or being a function that is meaningful to a person with Autism.” “I have more tools to use with working with individuals with autism and have a better understanding of the issues related to autism.” “The presenter made me see the possibilies of educating my students with autism in the regular classroom, I feel empowered.” Regional Workshops The goal of KATC’s regional workshops was to include information that was useful to both families and professionals ”close to home”. KATC staff are aware that many individuals across the Commonwealth have limited time and resources to travel significant distances to receive information on “best practices”. To reach diverse areas across the state, the KATC delivered nine regional workshops around Kentucky. Five hundred and three professionals, paraprofessionals/instructional assistants, family members and full time students from sixty counties in Kentucky, and two counties in Indiana were in attendance. Participants attending the Regional Workshops resided in the following counties: Anderson Barren Bell Boone Boyd Boyle Bracken Breckenridge Butler Calloway Campbell Carroll Carter Christian Clark (IN) Clinton Daviess Elliott Floyd Franklin Grant Graves Greenup Hardin Hart Henry Hopkins Jackson Jefferson Kenton Knott Laurel Lawrence Letcher Lewis Madison Magoffin Marshall McCracken Meade Mercer Muhlenberg Nelson Ohio Ohio (IN) Oldham Owen Pendleton Perry Pike Pulaski Robertson Rockcastle Rowan Scott Shelby Spencer Warren Webster Whitley 20 Emily Kirkham provides hands-on training. Below is summary of evaluation data from participants of the KATC’s Regional • To what degree did the work meet your expectations? Workshops. Five hundred participants completed evaluations. Utilizing a five point • To what degree did the work improve your understanding of autism? scale, participants were asked to provide feedback regarding training activity, with • To what degree will you be able to apply the information at the workshops? “5” representing highest satisfaction and “1” indicating participant’s complete • To what degree will the information impact your work with individuals with dissatisfaction with the activity, as well as several open-ended questions. Sample Autism Spectrum? questions are as follows: • To what degree will you share this information with other families and professionals? • To what degree did it motivate you to learn more about autism? Figure 9: Evaluation Data 2006-2007 Regional Workshops Evaluation Data n=525 (Participants had the opportunity to attend morning and afternoon sessions) September 19-20 Location Presentation Title Speaker(s) Meet Expectations Increase Understanding Apply Information Impact Work Share Info Motivated to Learn Jenny Wiley State Park Floyd County Simple Strategies for the Home Emily Kirkham Carrie Gabbard 4.6 4.6 4.0 4.6 4.6 5.0 Autism Boot Camp Emily Kirkham Carrie Gabbard 4.4 4.4 4.4 4.4 4.6 4.7 Early Childhood Picture Based Communication Systems Emily Kirkham 4.7 4.7 4.6 4.7 4.8 4.6 Visual Supports and Curriculum Modifications Carrie Gabbard 4.5 4.4 4.6 4.5 4.6 4.6 Peer and Social Issues and Sexuality Kari Huber 3.8 4 4.1 4.2 4.3 4.3 October 10Spectrum Building Jefferson County Autism and Asperger’s Disorder Dr. Peter Tanguay 4.2 4.7 3.8 3.8 4.1 4.5 October 11-12Ralph Rush Professional Development Center Boone County High Functioning Autism and Asperger’s Dr. Brenda Smith- Myles 4.8 4.8 4.8 4.8 4.9 4.9 Strategies for Young Learners with ASD Emily Kirkham Carrie Gabbard 4.6 4.5 4.5 4.5 4.8 4.9 October 25-26Lake Barkley State Park Trigg County Comprehensive Autism Planning System Katie Carnazzo 4 4.1 4.1 4.2 4.4 4.7 Behavioral Supports for Individuals with ASD James Adkins 4.5 4.3 4..6 4.7 4.6 4.9 “I love examples and stuff I can actually put into use rather than talking theory.” “The content was meaningful and explained well. They also offered great advice for accomplishing goals.” “I learned a lot to take back to the classroom.” “It will help me to more effectively work to increase communication between stakeholders.” Figure 9: Evaluation Data 2006-2007 Regional Workshops Evaluation Data n=525 (Participants had the opportunity to attend morning and afternoon sessions) November 7Spectrum Building Jefferson County Family Session: Strategies and Techniques for the Home Carrie Gabbard 5 5 5 5 5 5 Sensory Issues and Autism Anglea Lilly Emily Kirkham 4.3 4.5 4.5 4.5 4.7 4.8 Promoting Communication and Social Skills Brenda McMillian, M.S. CCC-SLP 3.7 4.0 3.9 3.9 4 4.3 Behavioral Supports for Individuals with ASD James Adkins 3.9 3.9 4.2 3.9 4.4 4.5 To Pee or Not to Pee Dr. Lisa Kemmerer 4.5 4 5 4.8 5 4.8 Adolescent and Adult Issues: Sexuality and ASD James Adkins 4.2 4 4.1 3.8 4.2 4.5 November 16E-Town Community & Technical College Hardin County Increasing Functional Communication Dr. Lisa Kemmerer 4.1 3.5 4.1 4.1 4.7 4.6 Adolescent and Adult Issues : Sexuality and ASD James Adkins 4.4 3.8 4.0 4.2 5.0 4.6 Behavioral Supports for Individuals with ASD James Adkins 4.4 4.1 4.2 4.5 4.8 4.7 March 15Laurel County Library “Autism Boot Camp” Emily Kirkham Carrie Gabbard 4.7 4.7 4.6 4.7 4.9 4.9 March 22Convention Center Inn Muhlenburg County “Autism Boot Camp” Katie Carnazzo Emily Kirkham 4.4 4.6 4.3 4.5 4.6 4.8 March 23Bellefonte Centre Greenup County “Social Supports for Individuals with Autism Spectrum Disorders” James Adkins 4.4 4.6 4.3 4.5 4.6 4.8 “Brought my awareness of the issues of autism to a higher level.” KATC Annual Report 2006 – 2007 The Kentucky Autism Training Center would like to thank the following for their collaborative efforts and support towards making the Regional Workshop Series: Big East Special Education Cooperative Cathy Durkan, KATC Advisory Board Dennis Tharpe, Elizabethtown Community and Technical College Jenny Wiley State Resort Park Staff Karen Snelling, Boone County Schools Karl Feltman and Debbie Southworth, Ralph Rush Professional Development Center in Boone County Kentucky Special Education Cooperatives Lake Barkley State Resort Park and Staff Laurel County Public Library Local Autism Support Groups Local Educational Agencies Northern Kentucky Special Education Cooperative Our Lady of Bellefonte Hospital/Pediatric Rehabilitation Sharon Moore, Pike County Schools Wendy Ann Everly, KATC Advisory Board West Kentucky Special Education Cooperative 23 KATC’s Katie Carnazzo and James Adkins at Lake Barkley State Resort and Park. Bill Rigney and Kari Huber, Kentucky Valley Educational Cooperative. KATC Annual Report 2006 – 2007 The Kentucky Autism Training Center would like to thank the following for their collaborative efforts and support towards making the Regional Workshop Series: Big East Special Education Cooperative Cathy Durkan, KATC Advisory Board Dennis Tharpe, Elizabethtown Community and Technical College Jenny Wiley State Resort Park Staff Karen Snelling, Boone County Schools Karl Feltman and Debbie Southworth, Ralph Rush Professional Development Center in Boone County Kentucky Special Education Cooperatives Lake Barkley State Resort Park and Staff Laurel County Public Library Local Autism Support Groups Local Educational Agencies Northern Kentucky Special Education Cooperative Our Lady of Bellefonte Hospital/Pediatric Rehabilitation Sharon Moore, Pike County Schools Wendy Ann Everly, KATC Advisory Board West Kentucky Special Education Cooperative 23 KATC’s Katie Carnazzo and James Adkins at Lake Barkley State Resort and Park. Bill Rigney and Kari Huber, Kentucky Valley Educational Cooperative. KATC Annual Report 2006 – 2007 Autism Institute 2007 “Putting the pieces together through collaboration” is a constant theme at the Kentucky Autism Training Center. Promoting the spirit of collaboration, Larry Taylor, Director of the Division of Exceptional Children Services with the Kentucky Department of Education (KDE) presided over the opening ceremony at the 8th Annual Autism Institute. Mr. Taylor delivered an inspirational message to professionals and parents; he spoke of his own experiences as a professional in the field of education and where he hopes educational services are moving. In addition, Mr. Taylor outlined the collaborative relationship and efforts between the KDE and KATC—such as the Annual Autism Institute. Due to this collaborative effort, we were able to offer the approximately 573 attendees nine different presentations from distinguished speakers from Kentucky and across the county. The following professional organizations were represented at the Autism Institute 2007: AD Quest ELC Bethel College Bluegrass Impact South Boys Haven Brooklawn CAKY of Somerset Center for Accessible Living Community Choices Department of Mental Health and Mental Retardation First Steps of Indiana First Steps of Kentucky Kelly Autism Program Western Kentucky University Kentucky Department of Vocational Rehabilitation Kentucky Valley Education Cooperative Lifeskills North Key Community Services Phoenix Preferred Care Reach of Louisville Spalding University State Advisory Panel for Exceptional Children, Kentucky Department of Education University of Louisville Campus Police Department College of Education and Human Development Kent School of Social Work Professionals 49% Instructional Assistants/Para Professionals 25% Family Members 13% Students 1% Role Not Specified 12% Figure 10: Breakdown of Attendees at Autism Institute 2007 24 KATC Annual Report 2006 – 2007 Autism Institute 2007 “Putting the pieces together through collaboration” is a constant theme at the Kentucky Autism Training Center. Promoting the spirit of collaboration, Larry Taylor, Director of the Division of Exceptional Children Services with the Kentucky Department of Education (KDE) presided over the opening ceremony at the 8th Annual Autism Institute. Mr. Taylor delivered an inspirational message to professionals and parents; he spoke of his own experiences as a professional in the field of education and where he hopes educational services are moving. In addition, Mr. Taylor outlined the collaborative relationship and efforts between the KDE and KATC—such as the Annual Autism Institute. Due to this collaborative effort, we were able to offer the approximately 573 attendees nine different presentations from distinguished speakers from Kentucky and across the county. The following professional organizations were represented at the Autism Institute 2007: AD Quest ELC Bethel College Bluegrass Impact South Boys Haven Brooklawn CAKY of Somerset Center for Accessible Living Community Choices Department of Mental Health and Mental Retardation First Steps of Indiana First Steps of Kentucky Kelly Autism Program Western Kentucky University Kentucky Department of Vocational Rehabilitation Kentucky Valley Education Cooperative Lifeskills North Key Community Services Phoenix Preferred Care Reach of Louisville Spalding University State Advisory Panel for Exceptional Children, Kentucky Department of Education University of Louisville Campus Police Department College of Education and Human Development Kent School of Social Work Professionals 49% Instructional Assistants/Para Professionals 25% Family Members 13% Students 1% Role Not Specified 12% Figure 10: Breakdown of Attendees at Autism Institute 2007 24 KATC Annual Report 2006 – 2007 Listed below are the counties in Kentucky that were represented at the Autism Institute 2007: Adair Allen Barren Bourbon Boyd Boyle Bullitt Butler Calloway Campbell Casey Christian Edmonson Elliott Estill Fayette Floyd Franklin Gallatin Grant Graves Grayson Green Greenup Hancock Hardin Harlan Harrison Hart Henry Hopkins Jefferson Kenton Laurel Lawrence Lincoln Lincoln Madison Marshall McCracken Meade Mercer Morgan Muhlenberg Nelson Oldham Owen Perry Pulaski Rowan Scott Shelby Simpson Spencer Taylor Union Union Warren Webster Whitley 25 Larry Taylor, Director of Exceptional Child Evaluation, Kentucky Department of Education. KATC staff and Kristi Saki (presenter) KATC Annual Report 2006 – 2007 Listed below are the counties in Kentucky that were represented at the Autism Institute 2007: Adair Allen Barren Bourbon Boyd Boyle Bullitt Butler Calloway Campbell Casey Christian Edmonson Elliott Estill Fayette Floyd Franklin Gallatin Grant Graves Grayson Green Greenup Hancock Hardin Harlan Harrison Hart Henry Hopkins Jefferson Kenton Laurel Lawrence Lincoln Lincoln Madison Marshall McCracken Meade Mercer Morgan Muhlenberg Nelson Oldham Owen Perry Pulaski Rowan Scott Shelby Simpson Spencer Taylor Union Union Warren Webster Whitley 25 Larry Taylor, Director of Exceptional Child Evaluation, Kentucky Department of Education. KATC staff and Kristi Saki (presenter) Answering the question…Do you plan to attend next year’s Autism Institute? 70% Said Yes 11% Said No 19% Undecided or did not answer The KATC’s Autism Institute is gaining regional recognition. Attendees also hailed from the surrounding states of Alabama, Tennessee, Indiana and Ohio. Below is summary of evaluation data from attendees from Autism Institute 2007. 993 evaluations were completed. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open-ended questions. Sample questions are as follows: Figure 11: Feedback on Sessions at Autism Institute 2007 Evaluation Data N=993 26 • To what degree did the session enable me to achieve the learning objectives? • To what degree will I be able to apply the knowledge and/or skills gained from this session? • To what degree did the session contribute to my professional/personal growth? • To what degree were materials and resources helpful and was I motivated to seek additional information? KATC Annual Report 2006 – 2007 Answering the question…What specific strategy did you find most useful at Autism Institute 2007? “AAC, I have had limited experience so I got a lot of really good information that I will implement in the new school year.” “Dr. Cafiero’s session was great! Lots of ideas, good blend of theory and practice.” “Incorporating sensory integration issues, use of visual supports, grading tasks as interventions. All of the information presented was invaluable!” “The correct way to collect data.” Session Title and Speaker Achieve Learning Objectives Apply Knowledge Contribute to Professional Growth Appropriate Session Materials How to Create a Para Pro Dream Team Diane Twatchman Cullen Ph.D., CCC-SLP n=141 4.1 4.3 4.3 4.1 First, Know Thyself Kristi Sakai n=137 4.1 4.1 4.2 4.0 Autism and Augmentative Communcation Joanne Cafiero Ph.D. n=75 4.6 4.7 4.7 4.7 Building Social Relationships Scott Bellini, Ph.D. HHSP n=236 4.6 4.6 4.6 4.6 Data Collection Boot Camp Lisa Kemmerer, Ph.D. Amy Lingo, Ph.D. n=23 4.3 4.2 4.2 4.3 The Importance of Sensory Processing Scott Tomchek, Ph.D. n=166 4.2 4.2 4.2 4.2 Weathering Employment Dave Hamrick, M.S. Lindsay Nebeker, B.A. n=41 4.7 4.7 4.8 4.7 Sensory Strategies and Supports Angie Lilly, OTR/L n=161 4.4 4.4 4.4 4.4 The Significance of Employment Milton Tyree n=13 4.8 4.8 4.8 4.8 KATC Annual Report 2006 – 2007 Kentucky Autism Supports and Provider Expo To assist in development of services and supports for individuals with autism and their families, the KATC hosted the 3rd Annual Kentucky Autism Services and Supports Expo during Autism Institute 2007. Participants included: Autism Society of Kentuckiana Bev Harp, Graduate Student, University of Kentucky Blessing Unleashed Foundation Broader Horizons Counseling/Horse Power Camelot Carriage House Educational Services and Preschool Center for Accessible Living Cerebral Palsy K.I.D.S. Center College Internship Program Department of Mental Health and Mental Retardation Services Edelson and Associates EF Foundation for Foreign Study FEAT of Louisville Home of the Innocents - Autism Services Human Development Institute - University of Kentucky Kelly Autism Program Kentucky Council on Developmental Disabilities Kid Power, Inc. Kentucky Awareness License Plates Kentucky Partnership for Families and Children, Inc. Laquetta’s Shaklee (Energize My Life) Learning Disabilities Association of Kentucky Mathis and Wempe Sensory Learning Music for Life: Music Therapy and Music Education Services Parent Outreach/Council on Mental Retardation Silver Circles, Inc Social Skills for Kids and My Turn for Kids Square One, LLC The Kentucky Assistive Technology Loan Corp. The Kentucky Resource Market The Spectrum Institute Therapeutic Collaborative University of Kentucky Unlimited Learning, PLLC - Neurodevelopment Treatment Center Vivian Lasley, First Steps Provider Voth Consulting - Relationship Development Intervention Waddell and Reed Western Kentucky Assistive Technology Center 27 KATC staff with keynote speaker, Jordan Blackwell KATC Annual Report 2006 – 2007 Kentucky Autism Supports and Provider Expo To assist in development of services and supports for individuals with autism and their families, the KATC hosted the 3rd Annual Kentucky Autism Services and Supports Expo during Autism Institute 2007. Participants included: Autism Society of Kentuckiana Bev Harp, Graduate Student, University of Kentucky Blessing Unleashed Foundation Broader Horizons Counseling/Horse Power Camelot Carriage House Educational Services and Preschool Center for Accessible Living Cerebral Palsy K.I.D.S. Center College Internship Program Department of Mental Health and Mental Retardation Services Edelson and Associates EF Foundation for Foreign Study FEAT of Louisville Home of the Innocents - Autism Services Human Development Institute - University of Kentucky Kelly Autism Program Kentucky Council on Developmental Disabilities Kid Power, Inc. Kentucky Awareness License Plates Kentucky Partnership for Families and Children, Inc. Laquetta’s Shaklee (Energize My Life) Learning Disabilities Association of Kentucky Mathis and Wempe Sensory Learning Music for Life: Music Therapy and Music Education Services Parent Outreach/Council on Mental Retardation Silver Circles, Inc Social Skills for Kids and My Turn for Kids Square One, LLC The Kentucky Assistive Technology Loan Corp. The Kentucky Resource Market The Spectrum Institute Therapeutic Collaborative University of Kentucky Unlimited Learning, PLLC - Neurodevelopment Treatment Center Vivian Lasley, First Steps Provider Voth Consulting - Relationship Development Intervention Waddell and Reed Western Kentucky Assistive Technology Center 27 KATC staff with keynote speaker, Jordan Blackwell KATC Annual Report 2006 – 2007 Below is summary of evaluation data from participants in the overall evaluation of Autism Institute 2007. One hundred and seventy-seven participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open-ended questions. Sample questions are as follows: • Whatwasyouroverallsatisfactionwithregistration? • Whatwasyouroverallsatisfactionwithnumberofsessions? • Whatwasyouroverallsatisfactionwithlengthofsessions? • Whatwasyouroverallsatisfactionwithqualityofsessions? • Whatwasyouroverallsatisfactionwithphysicalaccommodations? • Whatwasyouroverallsatisfactionwiththeinstituterating? “I liked all of the tangible examples.” “How to work with paraprofessionals to create a unified and cohesive team.” “Real life experiences shared by Dave Hamrick and Lindsey Nebeker.” “Scott Bellini’s session was terrific. I will use several of his strategies to address social skills.” “First time attending and everything was very interesting. A lot of valuable information.” “That we cannot assume students in the middle school know social skills. We need to teach them the social skills.” Figure 12: Overall Evaluation of Autism Institute 2007 Evaluation Data Autism Institute 2007 Evaluation n = 177 0 1 2 3 4 5 Registration NumberofSessions LengthofSessions QualityofSessions PhysicalAccomodations OverallInstituteRating 28 Speakers David Hamerick and Lindsey Nebecker KATC Annual Report 2006 – 2007 Below is summary of evaluation data from participants in the overall evaluation of Autism Institute 2007. One hundred and seventy-seven participants completed evaluations. Utilizing a five point scale, participants were asked to provide feedback regarding training activity, with “5” representing highest satisfaction and “1” indicating participant’s complete dissatisfaction with the activity, as well as several open-ended questions. Sample questions are as follows: • Whatwasyouroverallsatisfactionwithregistration? • Whatwasyouroverallsatisfactionwithnumberofsessions? • Whatwasyouroverallsatisfactionwithlengthofsessions? • Whatwasyouroverallsatisfactionwithqualityofsessions? • Whatwasyouroverallsatisfactionwithphysicalaccommodations? • Whatwasyouroverallsatisfactionwiththeinstituterating? “I liked all of the tangible examples.” “How to work with paraprofessionals to create a unified and cohesive team.” “Real life experiences shared by Dave Hamrick and Lindsey Nebeker.” “Scott Bellini’s session was terrific. I will use several of his strategies to address social skills.” “First time attending and everything was very interesting. A lot of valuable information.” “That we cannot assume students in the middle school know social skills. We need to teach them the social skills.” Figure 12: Overall Evaluation of Autism Institute 2007 Evaluation Data Autism Institute 2007 Evaluation n = 177 0 1 2 3 4 5 Registration NumberofSessions LengthofSessions QualityofSessions PhysicalAccomodations OverallInstituteRating 28 Speakers David Hamerick and Lindsey Nebecker KATC Annual Report 2006 – 2007 Fundraising Efforts “The need for more awareness, more research, and more treatment resources for autism will continue to grow as long as the number of cases being diagnosed increase,” said Lt. Governor Pence. “I am honored to take part in an event that will encourage more Kentuckians to take notice of this disease.” – Kentucky Lieutenant Governor Steve Pence Funraiser at the Comedy Caravan During Autism Institute 2007, KATC staff hosted a FUNraiser at the Comedy Caravan in Louisville, KY. Approximately, 65 people attended the evening of laughs to support the services offered by the KATC. Lieutenant Governor Steve Pence Leads “Ride On” Benefit for the KATC The motorcycle ride titled “Ride On,” is the first of its kind in Kentucky. Lieutenant Governor Steve Pence joined other avid motorcyclists to raise awareness about autism. Motorcyclists met at the Bluegrass Harley Davidson motorcycle location in Louisville and rode to Sparta, where they completed a lap at the Kentucky Speedway. The riders returned to Louisville for a celebration at the Brown Forman Amphitheater at Waterfront Park. While at the RIDE ON after party, attendees “rocked on” to the tunes of Tim Krekel & TKO, a local favorite. Children chased bubbles from the “Bubble Truck”. Delicious food and beverages were available from Uncle Smileys, Junie Jays, Struggle Buggy and Sivori Catering. A special thanks to local businesses that donated raffle items to the RIDE ON event: Actor’s Theatre of Louisville Bluegrass Harley Davidson Bourbons Bistro Churchill Downs Jack Frys Lavana Shurtliff Jewelry Leatherhead Melting Pot Soraia & Friends Inc. Stein Mart Swanson Reed Gallery Texas Road House The Summit Toddy’s Liquors in Bardstown, KY Tumbleweed Wild and Woolly Video Wilson Art Works, LLC 29 KATC Board Member Dr. Tanguay and Margaret take a whirl at Ride On. KATC Annual Report 2006 – 2007 Fundraising Efforts “The need for more awareness, more research, and more treatment resources for autism will continue to grow as long as the number of cases being diagnosed increase,” said Lt. Governor Pence. “I am honored to take part in an event that will encourage more Kentuckians to take notice of this disease.” – Kentucky Lieutenant Governor Steve Pence Funraiser at the Comedy Caravan During Autism Institute 2007, KATC staff hosted a FUNraiser at the Comedy Caravan in Louisville, KY. Approximately, 65 people attended the evening of laughs to support the services offered by the KATC. Lieutenant Governor Steve Pence Leads “Ride On” Benefit for the KATC The motorcycle ride titled “Ride On,” is the first of its kind in Kentucky. Lieutenant Governor Steve Pence joined other avid motorcyclists to raise awareness about autism. Motorcyclists met at the Bluegrass Harley Davidson motorcycle location in Louisville and rode to Sparta, where they completed a lap at the Kentucky Speedway. The riders returned to Louisville for a celebration at the Brown Forman Amphitheater at Waterfront Park. While at the RIDE ON after party, attendees “rocked on” to the tunes of Tim Krekel & TKO, a local favorite. Children chased bubbles from the “Bubble Truck”. Delicious food and beverages were available from Uncle Smileys, Junie Jays, Struggle Buggy and Sivori Catering. A special thanks to local businesses that donated raffle items to the RIDE ON event: Actor’s Theatre of Louisville Bluegrass Harley Davidson Bourbons Bistro Churchill Downs Jack Frys Lavana Shurtliff Jewelry Leatherhead Melting Pot Soraia & Friends Inc. Stein Mart Swanson Reed Gallery Texas Road House The Summit Toddy’s Liquors in Bardstown, KY Tumbleweed Wild and Woolly Video Wilson Art Works, LLC 29 KATC Board Member Dr. Tanguay and Margaret take a whirl at Ride On. KATC Annual Report 2006 – 2007 James Adkins M.A., Field Training Coordinator James Adkins has a Masters of Arts in Community/Agency counseling from Marshall University. James has been employed in the field of supporting people with developmental disabilities and mental health needs since 1995. He has worked with all ages and disabilities serving as clinical leader, service coordinator, QMRP, social worker, behavior support specialist and advocacy at some point during this time. Currently James provides educational based services to persons with, families of, and professionals who support persons with Autism. James’ specialization is in Positive Behavior Support with the adult population and desires to nurture the practice to all who would benefit. Katie Carnazzo, M.A., Coordinator Katie Carnazzo graduated from the University of Kansas with a masters degree in Human Development and Behavior Analysis. She has worked with children with autism for approximately 15 years in various roles. Ms. Carnazzo did her graduate work at Juniper Gardens Children’s Project in Kansas City, KS, designing and implementing programs, which promoted successful integration of children with autism into regular, age-appropriate classrooms. She trained teachers to use such programs as peer tutoring, cooperative learning groups, social skills groups, and social networks. She was an Iterant Teacher in the Lawrence Public Schools working in elementary schools with students with autism. In her current role at the KATC, Ms. Carnazzo provides direct training and technical assistance to education staff, social and community personnel, counselors, job coaches and families. Ms. Carnazzo also coordinates the KATC’s school-based technical assistance activities. Tonja Craig, Unit Business Manager Tonja has been with the University of Louisville since 1999. Previously Tonja worked in the business offices of the Obstetrics and Gynecology department, and School of Business. She joined the Kentucky Autism Training Center as a Unit Business Manager where she oversees the business operations of the Center. Her expertise includes preparing and analyzing the Center’s budget for both internal University use and for the Center’s Board Members and administering the Center’s grants. Additionally, she is the liaison to other University business units. Kristen Frarey, Program Coordinator Kristen joined the Kentucky Autism Training Center in the spring of 2001 to assist in the coordination and scheduling of KATC’s School and Family Services. She coordinates Presentations and Workshops to Family Groups and Organizations across KY. She facilitates quarterly billing for KATC Services. Most recently Kristen has worked with regional leaders and organizations to develop and facilitate a variety of Regional Workshops across the state and also serves as Conference Chair for the KATC’s Annual Autism Institute. KATC STAFF James Adkins, Katie Carnazzo, Rebecca Grau, Tonja Criag, Dr. Lisa Kemmer (CEHD), Carrie Gabbard, Dr. Amy Lingo (CEHD), Kirsten Frarey, Dr. Karen Karp (Chair, Teaching and Learning, CEHD), Dr. Robert Felner Dean, CEHD) and Emily Kirkham. 30 KATC Annual Report 2006 – 2007 James Adkins M.A., Field Training Coordinator James Adkins has a Masters of Arts in Community/Agency counseling from Marshall University. James has been employed in the field of supporting people with developmental disabilities and mental health needs since 1995. He has worked with all ages and disabilities serving as clinical leader, service coordinator, QMRP, social worker, behavior support specialist and advocacy at some point during this time. Currently James provides educational based services to persons with, families of, and professionals who support persons with Autism. James’ specialization is in Positive Behavior Support with the adult population and desires to nurture the practice to all who would benefit. Katie Carnazzo, M.A., Coordinator Katie Carnazzo graduated from the University of Kansas with a masters degree in Human Development and Behavior Analysis. She has worked with children with autism for approximately 15 years in various roles. Ms. Carnazzo did her graduate work at Juniper Gardens Children’s Project in Kansas City, KS, designing and implementing programs, which promoted successful integration of children with autism into regular, age-appropriate classrooms. She trained teachers to use such programs as peer tutoring, cooperative learning groups, social skills groups, and social networks. She was an Iterant Teacher in the Lawrence Public Schools working in elementary schools with students with autism. In her current role at the KATC, Ms. Carnazzo provides direct training and technical assistance to education staff, social and community personnel, counselors, job coaches and families. Ms. Carnazzo also coordinates the KATC’s school-based technical assistance activities. Tonja Craig, Unit Business Manager Tonja has been with the University of Louisville since 1999. Previously Tonja worked in the business offices of the Obstetrics and Gynecology department, and School of Business. She joined the Kentucky Autism Training Center as a Unit Business Manager where she oversees the business operations of the Center. Her expertise includes preparing and analyzing the Center’s budget for both internal University use and for the Center’s Board Members and administering the Center’s grants. Additionally, she is the liaison to other University business units. Kristen Frarey, Program Coordinator Kristen joined the Kentucky Autism Training Center in the spring of 2001 to assist in the coordination and scheduling of KATC’s School and Family Services. She coordinates Presentations and Workshops to Family Groups and Organizations across KY. She facilitates quarterly billing for KATC Services. Most recently Kristen has worked with regional leaders and organizations to develop and facilitate a variety of Regional Workshops across the state and also serves as Conference Chair for the KATC’s Annual Autism Institute. KATC STAFF James Adkins, Katie Carnazzo, Rebecca Grau, Tonja Criag, Dr. Lisa Kemmer (CEHD), Carrie Gabbard, Dr. Amy Lingo (CEHD), Kirsten Frarey, Dr. Karen Karp (Chair, Teaching and Learning, CEHD), Dr. Robert Felner Dean, CEHD) and Emily Kirkham. 30 KATC Annual Report 2006 – 2007 Carrie Gabbard M.Ed., Field Training Coordinator Carrie Gabbard taught in a self-contained MD classroom for the Jefferson County Public School System in Louisville, KY. She has a Masters degree in Education from Bellarmine University, with an endorsement in Learning and Behavior disorders. During her years as a classroom teacher, she worked primarily with children with autism for whom she developed language acquisition, communication, social skills, and academic programs to help insure her students’ success at school and home. In 2004, she was named Jefferson County Public Schools Exceptional Child Education Teacher of the Year. In her role at the KATC, Ms. Gabbard develops and implements programs for families and educators throughout Kentucky. She provides hands on and small group trainings to families, school employees and community resource personnel. Ms. Gabbard has also taken on the responsibility of maintaining the KATC resource library. In addition, Ms. Gabbard teaches classes at the University of Louisville as a part-time instructor in the field of Autism. Classes include; Autism: An Introduction and Understanding, Augmentative Communication and Autism: Collaboration and Techniques. Rebecca Grau, M.P.A., Program Coordinator, serving as Interim Director Rebecca Grau graduated with a Masters degree in Public Administration at the University of Louisville. Ms. Grau coordinates the Center’s administrative responsibilities and is working to increase collaboration among families and professionals to develop an efficacious system of care for individuals with autism and their families across the Commonwealth. Emily Kirkham, B.S., Field Training Coordinator Emily Kirkham graduated from the University of Louisville with a Bachelors degree in Sociology. She has worked with children with Autism for six years. She was the classroom teacher with the Endeavor Program at the Kentucky Center for Special Children’s Services and Preschool (Carriage House), a therapeutic program to prepare students with ASD for elementary school. While in this role she developed behavior, communication, social and toileting programs for classroom students. She also served as an Intervention Specialist with Caritas Peace Center in the Innovations Program. This program serves children and adolescents with developmental disabilities, mental retardation, and autism. She assisted program participants when these conditions were accompanied by significant emotional or behavioral challenges that impede meaningful family, social, and community integration. In her current role at the KATC, Ms. Kirkham assists in the development of programs for use across Kentucky. She provides direct training and technical assistance to education staff, social and community personnel, counselors, job coaches and families. Carrie Gabbard, Rebecca Grau, Emily Kirkham, Tonja Craig, Katie Carnazzo, James Adkins and Kristen Frarey. 31 KATC Annual Report 2006 – 2007 Carrie Gabbard M.Ed., Field Training Coordinator Carrie Gabbard taught in a self-contained MD classroom for the Jefferson County Public School System in Louisville, KY. She has a Masters degree in Education from Bellarmine University, with an endorsement in Learning and Behavior disorders. During her years as a classroom teacher, she worked primarily with children with autism for whom she developed language acquisition, communication, social skills, and academic programs to help insure her students’ success at school and home. In 2004, she was named Jefferson County Public Schools Exceptional Child Education Teacher of the Year. In her role at the KATC, Ms. Gabbard develops and implements programs for families and educators throughout Kentucky. She provides hands on and small group trainings to families, school employees and community resource personnel. Ms. Gabbard has also taken on the responsibility of maintaining the KATC resource library. In addition, Ms. Gabbard teaches classes at the University of Louisville as a part-time instructor in the field of Autism. Classes include; Autism: An Introduction and Understanding, Augmentative Communication and Autism: Collaboration and Techniques. Rebecca Grau, M.P.A., Program Coordinator, serving as Interim Director Rebecca Grau graduated with a Masters degree in Public Administration at the University of Louisville. Ms. Grau coordinates the Center’s administrative responsibilities and is working to increase collaboration among families and professionals to develop an efficacious system of care for individuals with autism and their families across the Commonwealth. Emily Kirkham, B.S., Field Training Coordinator Emily Kirkham graduated from the University of Louisville with a Bachelors degree in Sociology. She has worked with children with Autism for six years. She was the classroom teacher with the Endeavor Program at the Kentucky Center for Special Children’s Services and Preschool (Carriage House), a therapeutic program to prepare students with ASD for elementary school. While in this role she developed behavior, communication, social and toileting programs for classroom students. She also served as an Intervention Specialist with Caritas Peace Center in the Innovations Program. This program serves children and adolescents with developmental disabilities, mental retardation, and autism. She assisted program participants when these conditions were accompanied by significant emotional or behavioral challenges that impede meaningful family, social, and community integration. In her current role at the KATC, Ms. Kirkham assists in the development of programs for use across Kentucky. She provides direct training and technical assistance to education staff, social and community personnel, counselors, job coaches and families. Carrie Gabbard, Rebecca Grau, Emily Kirkham, Tonja Craig, Katie Carnazzo, James Adkins and Kristen Frarey. 31 Personnel $ 386,783.20 Including the Acting Director, personnel included permanent full-time and part-time employees plus temporary employees. Total Field Training Coordinators were 4.0 FTE positions for FY 2006/2007. Additional core staff included a Director of Family Services (WHAS Crusade), Unit Business Manager, Graduate student (WHAS Crusade), temporary Field Training Coordinator (WHAS Crusade), Program Coordinator; part-time Trainers were paid for during the past year. (Including Fringe Benefits) Operating Expenses $ 187,988.30 Items such as procurement card expenses (including such purchases as office supplies, small equipment, instructional supplies, and registrations), postage, copiers/maintenance, telephone/communications expenses, duplicating/printing, KATC conference, honorariums, building rent, Graduate student scholarship (tuition remission a semester and medical insurance), stockroom/office supplies, and vehicle rental are included in operating expenses. Travel $ 22,188.33 Travel expenses include mileage, overnight accommodations, and in some instances meals of KATC employees who travel throughout the state to train and to attend some conferences. Indirect Cost $ 12,108.85 Indirect cost (overhead) was paid on three grants. TOTAL $609,068.48 2006-2007 KATC Budget Major Spending Categories KATC Annual Report 2006 – 2007 Figure 13: 2006-2007 KATC Budget Major Categories Personnel 64% Operating Expenses 30% Travel 4% Indirect Cost 2% 32 Personnel $ 386,783.20 Including the Acting Director, personnel included permanent full-time and part-time employees plus temporary employees. Total Field Training Coordinators were 4.0 FTE positions for FY 2006/2007. Additional core staff included a Director of Family Services (WHAS Crusade), Unit Business Manager, Graduate student (WHAS Crusade), temporary Field Training Coordinator (WHAS Crusade), Program Coordinator; part-time Trainers were paid for during the past year. (Including Fringe Benefits) Operating Expenses $ 187,988.30 Items such as procurement card expenses (including such purchases as office supplies, small equipment, instructional supplies, and registrations), postage, copiers/maintenance, telephone/communications expenses, duplicating/printing, KATC conference, honorariums, building rent, Graduate student scholarship (tuition remission a semester and medical insurance), stockroom/office supplies, and vehicle rental are included in operating expenses. Travel $ 22,188.33 Travel expenses include mileage, overnight accommodations, and in some instances meals of KATC employees who travel throughout the state to train and to attend some conferences. Indirect Cost $ 12,108.85 Indirect cost (overhead) was paid on three grants. TOTAL $609,068.48 2006-2007 KATC Budget Major Spending Categories KATC Annual Report 2006 – 2007 Figure 13: 2006-2007 KATC Budget Major Categories Personnel 64% Operating Expenses 30% Travel 4% Indirect Cost 2% 32 33 33 KATC Annual Report 2006 – 2007 2006 – 2007 Kentucky Autism Training Center FY 03/04 Expense Report KY COUNCIL POST SEC ED GENERAL LEGISLATED FUNDS INCOME KDE CSPD FUNDS WHAS Crusade JCPS Service Contract KATC Gift Account TOTALS BUDGET EXPENDED BUDGET EXPENDED BUDGET EXPENDED BUDGET EXPENDED BUDGET EXPENDED BUDGET EXPENDED BUDGET EXPENDED TOTAL BUDGET TOTAL EXPENDED Salary 260,827.00 91,572.99 123,156.00 102,357.68 --77,090.00 71,655.02 59,000.00 50,539.76 ---520,073.00 316,155.45 Fringe Benefits 62,598.00 27,840.29 29,810.00 26,441.11 -19,273.00 16,346.35 -----111,681.00 70.627.75 TOTAL Sal & F.B. 323,425.00 119,413.28 152,966.00 128,798.79 --96,363.00 88,001.37 59,000.00 50,569.76 ---631,754.00 386,783.20 Operating Expenses 112,175.00 59,850,67 47,679.00 43,732.20 117,473.57 39,149.73 28,886.00 28,680.65 12,400.00 11,560.99 5,952.00 4,309.06 14,012.83 705.00 338,578.40 187,988.30 Travel 30,000.00 22,188.33 30,000.00 22,188.33 Indirect Cost 12,420.00 10,994.34 1,548.00 1,114.51 12,420.00 12,108.85 TOTAL Operations 112,175.00 59,850.67 47,679.00 43,732.20 117,473.57 39,149.73 71,306.00 61,863.32 12,400.00 11,560.99 7,500.00 5,423.57 14,012.83 705.00 380,998.40 222,285.48 Revenue TOTAL 435,600.00 179,263.95 200,645.00 172,530.99 117,473.57 39,149.73 167,669.00 149,864.69 71,400.00 62,130.75 7,500.00 5,423.57 14,012.83 705.00 1,012,752.40 609,068.68 Balance = Budget – Expended 256,336.05 28,114.01 78,323.84 17,804.31 9,269.25 2,076.43 13,307.83 403,683.72